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My story: Hashimoto’s Encephalitis

I have been trying for SIX months to write down what has been going on in my life and coming up empty handed. End of July 2017, I was caught off guard with being diagnosed with Hashimoto’s Encephalitis (HE). We had just been in Disney celebrating 10 years of marriage what an amazing time. Then we came home to go on our annual camping trip for a week! We had amazing and very full two weeks only to come home not feeling well. I kind of thought Adam had brought me home some rare cold from China. My head was hurting, my eyesight was weird and every now and then my hands, face and arms would go numb. After an eye visit I was at Target and my face started to go numb. I freaked. As I walked out of the store my left side of my face was numb along with my hands. I tried to call Adam who was working from home. I couldn’t speak. He just kept saying he couldn’t understand me. I just kept repeating myself. But nothing. Finally I tried texting him. “I’m at Target come get me ASAP.” I felt as if I was having a stroke. He got me and we went straight to the ER. After a long while they finally sent me home saying it was a migraine. I went to see my family doctor and he concurred. Still not feeling quite right I decided to just go with that. But then I started not eating and vomiting. I mean cool, right? I was just so tired. I’m the type of person who when feels sick just tries to block it out and just continue living life and not taking a break in my busy schedule. So, I tried to do that. On July 29th I woke up with double vision. Couldn’t wear my glasses so I really couldn’t see. I tried to just deal with it but finally Adam took me back to the ER. They admitted me after a few hours. I was in the hospital for FIVE days.
I wish you could understand how freaking scared I was. At first they told me I might have cancer!? MS!?! Or some other disease! Come to find out that what it really was is a rare disease called HE. While in the hospital Adam took such good care of me. He definitely was there for me for better or the worse and in sickness and in health. He is a good man. I am very thankful for him.  My brain went through so much. I’m still having moments where I cannot remember things. That sucks. I had to have a spinal tap right away and then two MRIs and a cat scan. Everything came back and they just kept checking things off there “NOPE NOT IT” list. Finally, they decided it was HE. Right away, I went on a high dose of steroids to fix it! Two more days and on August 2nd they let me go home.
Things were a little fuzzy when I was in the hospital, so I don’t remember all that much.
I didn’t really tell people I was in the hospital because of all the unknowing and confusion. But I did have many visitors which made me happy. Thank you for being there for me. After going home, I had to take pill form of steroids for a few weeks and then I was much better. Since then I hadn’t had many issues. Only two real numb and loss of words moments.
I did finally edit all my vlogs from that time. So weird all the days missed and what I managed to capture is a weird mix of all sorts of things…..my brain was lost. It just needed time to fix itself.
{Here are the videos from around that time….mind you I skipped a bunch of days and never really explained what was going on….they are what they are.}
Fast forward five months and in December the top of my left eye suddenly went black. I saw the eye doctor and then my brain specialist again. Yay for another MRI. Those machines are SO LOUD. In reviewing the scans and comparing them to July, my brain looks much better. Still some lesions and white matter hanging around. Steroids were prescribed again and my eyesight should be just fine. No trouble with taking photos though! I shoot out of both eyes so no issue here!!
In January 2018, I finally got to leave the country to travel.  We had plans to go to Greece in September 2017 but the Doctors said not to go yet. The trip to Nicaragua was wonderful and I had ZERO issues. A huge relief.  At the end of February I get to start the steroids to fix my left eye.
Thank you for all the kind words. Much love, Miranda
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