A personal post. WOW. Seems like forever. This blog used to be my go-to for love posts about Adam, fun parties I host and wanted to share, business news, fertility issues, things I am loving and so much more. Life has just been all over the place I just want to get my work out there for all of you to see I forgot to post anything on my personal end. I feel like I do so much of that on Instagram I forget to do it here! Oh man!
I wanted to update you on my health. I posted about it in January 2018 and never since so let’s change that. January 2019 I went in for a second opinion. After speaking with the U-M neurologist for two hours he came back in the room and said, “Yea, we have no clue. You have a very complicated medical history.” I looked at my mom I did an eye roll and said, “Why did we come here?” He told me to look into Henry Ford in Downtown Detroit. So I made an appointment for a neurologist and the next week I got in. This Doctor was very nice and came back with some options for what she thought it could be but she wanted me to do a long list of orders. She did tell me I do not have and never had Hashimoto Encephalopathy. This was a shocker. To be told you have something and you live with it for years only to be told you don’t have it leaves you empty. In the next three months, I had a bunch of blood draw, saw an ENT, had a two hour MRI, saw three different eye Doctors and did another spinal tap. Plus so much more. It was exhausting but I did it all. In the meantime, I was trying to still live life. Adam and I had agreed that with all my testing and Doctor appointments I would step back some from booking new clients. It was a hard discussion to do but very much needed. Also during this time, Adam’s father passed and since then we have been staying in our camper in their driveway in Tecumseh. I got my results from everything and it was decided I have Susac Syndrom. Another super rare autoimmune disease.
Here is a brief description: Susac syndrome is a relatively rare disorder characterized by three main problems: impaired brain function (encephalopathy), partial or complete blockage (occlusion) of the small arteries and capillaries that supply blood to the retina (branch retinal artery occlusion, or BRAO), and inner ear disease (hearing loss, most notably).
Which would explain my random vision losses and hearing loss. The Doctor wants me to go on immunosuppressants or steroids long term. I don’t want to do either because of their side effects. We are still in the middle of going through Adam’s family stuff and I don’t have time to think about what course I want to take. I have been looking into supplements. I was also diagnosed as a type 2 Diabetic and have been living a new lifestyle since. No carbs and no sugar, since then I have started welcoming both back into my life, just in moderation. I feel healthier and am eating way better. (I still love a good doughnut every blue moon)
So with all of this, you can see why I have been so spotty on blog posts. I have been shooting but haven’t found time to blog about it all. Life is hard. Other personal stuff is going on, on top of all of this. I have been in therapy for a year now and it really has been helping. My outlook is positive and I’m still smiling. Sometimes life throws us a curveball. My life has thrown me a lot of curveballs BUT I am still here! Living and wanting to live it to my fullest.
Much love, Miranda
PS. I’m still vlogging. The past month I have been trying to play catch up with my editing….so be patient. Thanks!